Links to Rett Organizations and Research

International Rett Syndrome Association
In its nineteenth year of operation this international organization is widely recognized as a leading source of information on Rett Syndrome.

The Blue Bird Circle Rett Center

This Center located at Baylor College of Medicine in Houston is part of a consortium that includes our clinical and research efforts Rett Research at the UAB Civitan International Research Center Sparks Clinics.

Click here for a listing of the Baylor Center Team.

Click here for Dr. Carolyn Shanen's research lab at UCLA.

Click here for the Rett Research home page at UAB's Sparks clinics.

DATABASE SITES

The Rett Gene Data Base
Developed by Dr. John Christodoulou and hosted by the Children's Hospital at Westmead in Australia this site is of special interest to researchers and students studying Rett Syndrome.

The InterRett - IRSA Rett Phenotype Database
The InterRett, the IRSA Rett Phenotype Database is currently under construction. It will extend the description of variation in the phenotype and provide comprehensive information about the range of clinical features found in Rett syndrome as well as management and treatments used around the world. As it develops, it will be linked to RettBASE the IRSA MECP2 variation database. The construction of this database has been funded by IRSA and is being managed by Dr Helen Leonard and Associate Professors Sue Fyfe and Nick de Klerk at the Telethon Institute for Child Health Research (Australia).

Disclaimer:
The links provided here go to other sites and are for information purposes only. No claim or endorsement is made as to the accuracy of information presented on the linked sites.